Phase 2 Part Deux

....So anyway, let me tell you how I finished off my visit yesterday....

After I was done with my CT scan and tattooage, we decided to walk over to the Proton Therapy center so I could orient myself a bit before I start treatment.

Can I just say first that when you go outside where the entrance to the main hospital is, surrounded by other buildings, it is utter chaos. There is tons of traffic, and construction and detours and people coming and going, and it's just high blood pressure inducing. It seems more heart-attack inducing than relieving.

When we went into the PT center and went up to the waiting room, it was an oasis. It's cheerful. There's a TV, a computer....I think one woman was making jewelry. It was nice. There is a really nice kids area with toys and books and lots of good kid stuff. That was kind of hard to see, but I think that's a whole other post. There were no kids about when we peeked in.

It's not lost on me how lucky I am to be so close to this place, and with insurance that will pay for the treatment. I'm not only getting some of the best treatment in the world, but they are trying to make me comfortable while providing it. It doesn't get much luckier than that. (People should know though that MGH has special grants for people with chordoma from out of town to help pay for lodging and expenses).

Don't worry, I'm not trying to be all Pollyanna here. I know it's not a week in Hawaii, but it's probably as good as it gets for this stuff, I think

Anyway, that about sums up my visit. We are off to NYC tomorrow for the weekend. C is excited about taking a choo choo train. Even a subway is a choo choo for her. It doesn't take much for kids. I loved that she was just thrilled with merely handing out candy on Halloween and seeing "big kids". She would stand on the steps holding some candy in her hand and shout, "Big Kids.....CANDY!" to try to lure them over.

Never fear, I have a laptop. I'll be reporting remotely from New York City and environs. Til then.